Lupus Awareness
Month Is Now!!!
May 1 – May 31
My Invisible. My Power
A bold, unapologetic campaign for every lupus warrior whose strength isn’t always visible but is always real.
Sign up for the Butterfly Retreat
Founder's Corner
Founder's Corner
Hey there, thanks for stopping by. I’m Shameka Johnson, Founder and Executive Director of LUP of Love. What sets LUP apart is that it’s led by a lupus warrior, someone who understands this journey not just in theory, but through lived experience.
I’ve been intentional about creating spaces that support people in living full lives with lupus, and Founder’s Corner is an extension of that intention. This is my offering to you, a space where I share what’s grounding me in real time, offering small gems, quiet reflections, and moments of care.
I hope something here meets you where you are.
This week feels like…
🎵 What I’m listening to: Myself is Who I Love by Tone Levels
One thing I’m holding onto...
“You are the greatest project you’ll ever work on
Restart, rest, refocus as many times as you need to
Just don’t give up on yourself” – unknown
To Every Lupus Warrior's
Support System & Caregiver
You may not carry the diagnosis, but you carry so much.
You carry the late nights when pain doesn’t sleep. You carry the doctor’s appointments, the medication schedules, the quiet research at 2am trying to understand something no one fully understands yet. You carry the worry — the kind that never completely leaves, even on the good days.
You show up when showing up is hard. You learn new languages — the language of flares, of fatigue, of fog. You rearrange plans without complaint. You have learned to celebrate the small victories because you understand how monumental they truly are.
This month, we see you. We honor you. The lupus community does not exist the way it does without you in it. Your love is medicine. Your patience is powerful. Your presence — on the hard days especially — is one of the greatest gifts our warriors receive.
Thank you for not walking away. Thank you for choosing to stay, to learn, to advocate, and to love fiercely in the face of something invisible and unpredictable. You are not behind the scenes — you are part of this fight.
With deep gratitude and love,
LUP of Love Community 💜
Lupus Awareness Downloadable Frame
Show support with by sharing the World Lupus Day Frames.
